So we are going on holiday in a few weeks. To centre parcs. They looked after us well last November ( with the exception of 4 steps up to the lodge that is). I'm hoping Nate stays well and the weather is fair but not too hot ( don't think thats going to be a worry).
If you think planning for a family holiday is difficult try doing it with a child with "complex needs"...we've had to sort/ take the following..
- oxygen concentrator will be there when we arrive ( thank you helpful oxygen company)
- sats monitor
-ventilator
- humidifier
-mask and tubing for ventilator
- spare of the above
- spare nasal canulae
- box of high calorie baby milk
- tape and duoderm for cannula
- antibiotics to prevent urine infections
- gaviscon for reflux
- oxygen cylinders ( portable)
- calpol and ibuprofen ( just in case!)
- travel cot
- pushchair
Things we can't manage to take include his special seat and his bath support.
So I'm really panicking that I will forget something vitally important. Hopefully the above list will help. I'm looking at it thinking anything else?
We also need to consider a plan in case of emergencies, or equipment breakages.
We really need a break. To unwind, de stress, and all those other words that rarely happen. Thea needs time to have fun ( although im not convinced by my husband booking her in for mini cross bowing ???? She's 4!) Our break needs to be about thea having fun, and getting the attention she needs. She is a special sibling after all.
When I look at the list of things for Nate I wonder how anyone with a child with complex needs manages to have a holiday at all. We are lucky, this is a treat from the inlaws who are also coming with us. Which means.... Me and Michael.....might actually.......have time to ourselves! What? I hear you cry, surely not?
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