I am writing this from Nates hospital bed. Yes another hospital stay.
frustration 1
We know when our child isn't well.
As we left hospital on Sunday Michael stated "we will be back". Neither of us felt comfortable leaving hospital but a bed shortage meant we were shoved in a bay on a random paediatric ward and left to ourselves. We went home as the drs were happy with Nate and discharged us.
Suffice it to say this wasn't the BEST decision ever made as yesterday my son decided to drop his sats and turn blue. By the time I'd hoofed up the oxygen and rang good old 999 he had picked up. The paramedics were lovely and Nate grinned happily at them ( little sod). So we had an ambulance ride, 4 hrs in a and e and then back onto the random ward but at least we have a room now. He is being observed. His oxygen is coming down gradually and he is getting bored ( always a good sign). His improved sight means cbeebies is of interest to him now which is amazing.
Frustration 2
We finally get upped to "urgent" on the housing list and they bid for us on a house. Michael drives round, finds thehouse has some windows boarded up, others smashed, and the garden broken into. Hmmm not convinced.
Frustration 3
I now have a beautiful baby niece called kara. And I've only got to see her one the day she was born. I want to be there for my sis and support her.
AMAZING
I have started a bit of fundraising for Nate. I think we have spent 18 months trying to keep him alive and fighting for the basics he needs to function. Well that's not good enough. He needs stimulation, he wants to develop, he wants to sit and I need to start doing as much as I can to help him. It's my job. My daughter told me she was going to "tell her school she was baking cakes and selling juice for her natie" and then got a £2 coin from her money box "theres £200 for natie mam" . I tried not to cry and just about succeeded.
What has amazed me are my family and friends who are helping support us. We have had large donations already. my junie friends are doing sponsored shenanigans for natie, other friends are arranging fun days at work and doing their very best to help. I love you all xxx
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