I remember when

I remember when

I had a high paid job, money to burn, holidays abroad.
I enjoyed a social life, meals out, time with friends.
I stressed about work
I fell out with my husband over stupid things
I jointly owned a house
I had a daughter I hardly saw working full time
I was blessed with another child, a unique little boy
I was told he wouldn't live long, that he had this syndrome or that syndrome
I had a boy who didn't breathe well, couldn't move, didn't open his eyes, didn't respond to light or sound, didn't feed, didn't make a sound, things were bleak.
I had a boy who we were told had "unusual features"
I felt very alone

How things change

We have no money, no where to live
I spend more time with my daughter who loves me picking her up from school
I make friends with nurses, portage workers, anyone we can depend on
I depend on charities for help and support
I see health professionals more than my own friends and family
I have a wonderful mature intelligent daughter, and very special son.
I have a son who laughs and smiles almost constantly, is sociable, loves noise and music, has started to play and explore his toys "properly", is starting to see, is breathing better, is stronger, is loving, and yesterday fed himself a wotsit.

Dance with me round your living room, celebrate with me. Eat a packet of wotsits.
Sometimes we don't realise the important things, the things that really matter. And then your child smears orange sticky crisps around their face and you start to cry with happiness, and realise the positives.