Well, the itv north east news thing went well. I only looked like I had 2 chins not 20 which is always a bonus. And feedback from friends, acquaintances and relatives has been overwhelmingly positive :)
We had a ventilation clinic appointment where a consultant who usually only sees Nate when ill seemed very pleased with him. We have to crack on and get him off oxygen during the day apparently! So Nate is down to 0.1 and doing well. The dr also wants a sleep study next month to try Nate off his ventilator at night ( under strict supervision). This terrifies me but it is a hint of progress and therefore a good thing!
Thea was a lovely innkeeper in her nativity. She cried on Monday as she couldn't see my mam and the mil, the head teacher tried to comfort her saying " shepherds don't cry" at which Thea replied "but I'm not a shepherd I'm an innkeeper!". This conversation was repeated by the head at the nativity Tuesday when we were there as an example of how confident and sure of themselves the reception class is!
I got the CCN team to chase up nates kidney results- all fine we can stop the antibiotics.
A phone call from the children with disabilities social worker to say we have been granted 9 nights respite ov the next 3 months at st oswalds. It's something we need but now I'm actually a bit apprehensive about leaving him.
Finally the SN pushchair ( bug) has been fitted with clips for the oxygen so I can actually use it! Whoop!
So now what we really need is 2 healthy kids for Christmas, and maybe a house
Hey....Santa?
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