Day case natie

In the run up to today's hospital stay I have been an anxious mess. Camomile tea on tap and rescue remedy at the ready, not to mention the EFT tapping. It's terrifying to have a child with breathing problems and neurological issues have a GA. Then there's the worry of what the results of the MRI and skin biopsy might show. There's a damn good reason why we had a break from testing. The state of limbo while you await results being a huge part of it. But new symptoms meant that a better picture of nate's brain and another look at his chromosomes was necessary. 

However , I was stunned by the improvement in nate's breathing. 

We went into hospital for an MRI and skin biopsy with a GA, and subsequent PICU and then ward stay. Nate usually needs airway help and ventilation on his bipap machine. He usually takes about 6 hrs to wake up and then needs oxygen. 

What actually happened was that we went to recovery and found a partially awake natie on only oxygen :) We went back to the surgical ward and nate's oxygen requirement reduced quickly. He was alert and happy. Total contrast to previous GAs. 

Even more amazing was that we got to go home! We were a day case! Unheard of in the world of natie capers.

Huge change in my boy. 

So now we wait for the MRI results- will it show a cause for the gelastic and probable dacrystic seizures? Is there a hypothalamic hamartoma nestled in there? Will the skin biopsy provide genetic results for a mosaic syndrome? 

So now it's a waiting game