*looks at me and rolls eyes*
What do you mean?
Well if you had to describe life with Nate, like if things can be tough or hard sometimes?
No mam, stop being silly things aren't hard for me just for you and dad. Well yes actually you and dad only play with me when the carer comes or Nates at st Oswalds.
Right. Um. Apart from that?
His sats thermometer (monitor) wakes me up! thats annoying. But i like the sound of his ventilator it helps me get to sleep. And he's heavy. (?)
How do you describe him to your friends? Do you say he's got a wheelchair?
A wheelchair? Don't be ridiculous mam it's a special needs push chair actually. I tell them he has problems walking and talking and eating but that he's lots of fun. They ask about his ng tube a lot.
What's the best thing about your brother?
Playing and being silly with him. he is cute and cuddly and gives good snuggles. And I can talk to him in his language of gerrr and he understands me and gerrrs back.
Ok.... You know you can talk to us about anything don't you? But do you ever worry about anything?
I worry about him getting poorly and when he has operations. I don't like it when he's in hospital.
He was in hospital loads that first year wasn't he?
I can't remember that mam I'm talking about now * major eye roll at me*
Can you think of anything to say to someone about having a brother or sister like Nate?
Don't be sad or worry it will be all right. Nate is very cute and I love him.
*attacks Nate with a rabbit and then lies down and cuddles him. Err not our actual rabbit a toy one*
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