bubbles pop

Bubbles

I started talking about bubbles in our SWANUK group. My friend Hayley posted about her experiences here  http://swanfreddie.wordpress.com/

I feel as if we have been in a little bubble these summer holidays. We had our little family holiday. My daughter has spent most of her time playing with new friends she has made in the street and I have spent most of my time trying to help Nate learn to sit or persuading Thea to spend time with me. 

Armed with gaiters, a superhero suit and leg splints i have been physio-ing natie tatie several times a day and managed to make my chilled out little boy extremely cross.
My world has been this new house, and my children. We havent seen many people, we have just got on with our "normal" life, and it has semmed pretty normal. With the exception of OT home visits we haven't had any appointments or groups. We have simply pottered along.

Now i won't lie. 6 weeks with a very clever extremely bossy 5 year old ( no idea where she gets it from) who knows exactly which buttons to press hasn't been easy. She needs to return to school, for everyone's sanity. But the return to school pops my little normal bubble you see, and part of me has quite enjoyed being hidden away from world.

There's the school yard. Thea joins the big one this year which means more people to take time to get used to Nate and stare. 

There's mixing with people while out and about who often dont know us but like to "share" their problems and equally want to know everything about me and Nate. Old ladies in particular! 

There's the schedule. Its busy. Monday physio group, Tuesday portage or VI home visit, Wednesday am hydrotherapy or sensory, pm VI group, Thursday developmental group. These things are all fabulous. Both myself and Nate enjoy them but it can be exhausting. i need a glass of vino just looking at it.

There's the fact its going to be winter soon. *gasp* Nate has been off oxygen now for a few months. i know that he is bigger and stronger but i am terrified of winter coughs and colds. And lets face it theres always one toddler who leans over to get a good look at Nate and coughs all over him.

Then there's the biggie. The hunt for a suitable school for Nate. The statementing process starts in September for his schooling to start the following September. This is very positive. We never though we'd get to this stage. The professionals certainly didn't. However the key point in this is finding somewhere "suitable" for Nate. The most suitable place is outside the area which will mean a huge battle with the LA for funding. Schools in the area seem to deal with mild to moderate LD or PD. I have yet to see any evidence of how a child with complex needs is catered for. Nate is visually impaired, has no communication, poor tone, health problems, and needs constant stimulation. He is so pleasant natured that i fear he would be ignored, or his needs not met.

"LAA LAA LAA" sticks fingers in ears and head in sand.
Bring back the bubble.