Monday, 7 November 2011

The last few and next few weeks..

In brief I shall attempt to summarise things-

Positives-
Got ormesa bug buggy for natie. It's very smart.
Got brio zento car seat
Nates mouth has healed fab and his swallowing is much improved- presumably with the extra saliva
Good physio session.
Spent more time with lovely daughter.

Negatives- the shelf for oxygen on bug pops off going out of my house. Not very helpful and the rep hasn't rang back.
Wondered why naties head was wandering off in the car seat- the cosy soft head support was missing and I had forgot we were supposed to get one.
CDT meeting tomorrow- always a depressing look at what he can't do
Feeding clinic next week- hate it when they try to watch him eat. He is not a monkey in the zoo and wont perform
Testes surgery appt- well its surgery got to stick it in the negatives
Paed has decided we cant continue oxygen weaning till after the winter-Yes I know it makes sense, but it's still disappointing.
Lovely daughter has been trying my patience- resulting in new reward chart

Yes I think that covers most of it

UPDATE
cdt meeting was not as scary as expected- the physio ( who isn't the one who comes to the house) was really pleased with the difference in him. And she never normally says anything vaguely positive! The SALT lady is coming out next week to watch him eat, but she and the dietician ( who rang after the meeting) are very pleased with his weight gain and length. The paediatrician at the meeting just watched Nate and said nothing. I think it was a case of because she doesn't have a diagnosis, feels its best to be non committal. Fair enough.

2 comments:

  1. Glad physio is happy with Nate. Always nice to hear some positives for a change. Understand your frustration with the paed...We never get much out of them.
    Glad to see your getting more time with your daughter, looks like shes been very busy in your pic! & nates looking as gorgeous as ever x

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  2. I may have mentioned before that I *love* Smiley's Bug Buggy, hope it works out for you too and glad to read some other positives too x

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