No appointments next week, seriously?

It is with absolute shock that I realise my calendar is clear next week. Surely not?

However when I think of how busy this week has been it seems only fair.
We started the week with a boiler service, oxygen collection ( of the extra cylinders we thought we'd need on holiday) and food shopping delivery.

Tuesday involved an inpromtue visit to the QE hospital as they couldn't change his reflux meds without seeing him, followed by an opthalmic appointment at the RVI. They could see no improvement from last time :( but said structurally everything is fine, the neural pathways are firing, but his brain isn't interpreting the images yet. It is too early to say if, when , and how much he will be able to see. Back in 6 months.

Wednesday I had some time for me. I met the lovely Jude and Kate for coffee, and their beautiful babies. For anyone reading who has a child who seizes I encourage you to look up their new charity small steps and " seize the day" to support families of babies and children who have seizures.
The evening involved some rose vino, a meal, and watching bridemaids with friends. That film is sooo funny!

Thursday was physio for Nate, gymnastics for thea, and should have been Nate getting his injections but he couldn't have them due to being on antibiotics.

Friday began with an ultrasound to hunt out nates testes. One has descended the other is hiding up a height and is still undescended. So this means another op. I wonder if they could do the 2 together? Hmm that sounds like it would take too much coordination for surgeons. Afterwards we went to our children's centre where a Nate tried out the ormesa bug pushchair, and several car seats. This was really productive. We will see the bug rep in September to sort padding and bits and pieces he needs for the chair. The brio zento was the best carseat for Nate. For both items the ot must apply for charitable funding so we are in for a long wait. But at least it's progress. The car seat looks great. And the bug doesn't look too SN, mind it will once Nate has the support he needs. It was hard hearing the ot and physio talk to the car seat rep who was asking things like when would his strength improve....?

So a lot crammed in