Yes it's that time again. Time to fill out the DLA form.
Nates first form was filled out in hospital during a lengthy stay, with help from welfare rights, and his dr. It focused on his risk of death (high) and uncertain future. This form has been filled out with help from portage. It still contains " at risk of death" " constant care needed to keep him alive" and other really depressing similar things. This time however we add "profoundly disabled" and " multiple complex physical and learning disablilities" oh joy.
As if that wasn't depressing enough we get lots of ticky boxes to indicate help or prompting needed to do everyday tasks. No box for "extremely sodding disabled you arse and needs everything done for him". Which, in my mind, would simplify everything.
I know these forms are supposed to cater for a huge variety and severity of disabilities but it seems to me that in reality they relate to very few. It would be far easier to bullet point issues and how they impact everyday life rather than fit into narrow descriptors. Most parts I had to elaborate on and I am left with the striking realization of how much care nate requires day and night. It's all become normal to us. I must be more adaptable than I thought.
At this point I did start to write a very basic outline of our day. But quite frankly just looking at it wore me out so I have deleted it.
Hmmm now I know why I'm so tired
